Are you interested in helping cerebral palsy research? People with cerebral palsy and their families are the most powerful supporters and promoters of cerebral palsy research. The AusCP-CTN CRE will engage with parents of children with or at high risk of CP, individuals with CP, key stakeholders, consumer groups and community groups through our annual workshops, public seminars, newsletter and social media.
Consumer and community involvement in research is about the active involvement of consumers, community members and researchers working together to make decisions about health research priorities, policy and practice. It is an active partnership that is sensitive to changing needs and priorities. It is about being part of the process as well as observing or commenting. Fundamentally, it is a commitment to conducting research that is with the community rather than to or for the community. This approach results in greater transparency, openness and accountability and research that is more relevant to the community.

About the course

This training workshop is specifically targetted for members of the public who would like to inform and shape research priorities in the area of cerebral palsy. This workshop is free, all workshop materials and lunch is provided. This workshop provides an introduction to research including funding, ethics, research terminology and how consumers can be involved. This interactive workshop will support consumers and community members to develop understanding, skills and confidence about becoming actively involved in research.

Download the course flyer CLICK HERE

This workshop is free, all workshop materials and lunch is provided. 

Register for this training course via Eventbrite CLICK HERE

We reserve the right to make changes to the event and determine the confirmed registration list. 


Course presenter

Anne McKenzie AM

Head, Consumer and Community Health Research Network

Anne McKenzie has worked as the Consumer Advocate at UWA and Telethon Kids Institute since 2004 and is currently the Head of the WA Consumer and Community Health Research Network. Her key task in this role is to implement a state-wide consumer and community involvement program across the WA Health Translation Network’s partner organisation. 

Anne is a senior consumer representative for Consumers Health Forum of Australia and former Chair of the Health Consumers Council of WA. She currently serves on key national and state health committees including the National Health and Medical Research Council, NPS, Medicines Australia and the Department of Health. 

In January 2015, Anne was appointed to the Order of Australia for 20 years of service in the area of health consumer advocacy.  he has established a dedicated website to support researchers to involve consumers and community members in health research.

Involving People in Research: Consumer Training Workshop

Fri 10 Nov 2017 10:00am2:30pm